What collaboration can include
Accessible explainers, awareness campaigns, listening sessions, public-science feedback, terminology review and introductions to verified ecosystem stakeholders.
Rare-disease communities
Listen first.
Communicate without exploitation.
Pragati Bhaisora leads KritRNA’s outreach and awareness strategy. Community work is intended to improve understanding and trust while preserving the boundary between education, research and clinical care.
What this route is not
It is not patient recruitment, diagnosis, treatment access, trial enrolment, genetic-report review or a promise of therapeutic benefit.
Data boundary
Do not send names, medical records, genetic reports, prescriptions, images or other health information through the public website.
Representation
Patient organisations remain independent. A conversation or event does not become a formal endorsement or partnership unless both sides approve that status.
Collaboration enquiry
Tell us about your organisation and the public need you are addressing.
The form requests organisational context only. Do not include individual patient stories with identifying or medical information.